February 11, 2010

February 11, 2010
ADAP Waiting List Update


Welcome to another day in my life. Today is Thursday and I hope you are having a safe and great week so far.

As you know I have been busy all week unpacking after moving from Jacksonville to the Fort Lauderdale area. Even after giving a ton of stuff to Lutheran Social Services in Jacksonville, I still had a ton of stuff to move and get settled. Luckily (or unluckily), the new place is much smaller than my last one so much of it is ending up in storage. Hopefully, I will be able to afford a larger place next year and close out the storage unit. But at least I have a roof over my head and the dogs. I know many who either do to health problems or unemployment are not so lucky.

Speaking of health problems, you know I was one of the first Americans diagnosed with HIV before the virus even had a name. The medications I have to take to keep me alive cost almost three thousand dollars a month. Because of Ryan White funding, I am able to afford these medications to keep myself alive. Unfortunately, several states have waiting lists for ADAP (AIDS Drug Assistance Program) which means hundred of financially challenged American men and women do not have access to these life saving HIV medications.

I recently received an update on the ADAP Waiting Lists in our country so I thought I would share the latest information with you.

ADAPs with Waiting Lists

(472 individuals, as of February 5, 2010)


Arkansas: 13 individuals
Idaho: 7 individuals
Iowa: 47 individuals
Kentucky: 157 individuals
Montana: 16 individuals
Nebraska: 24 individuals
North Carolina: 55 individuals
South Dakota: 24 individuals
Tennessee: 64 individuals
Utah: 64 individuals
Wyoming: 14 individuals


ADAPs with Other Cost-containment Strategies (instituted since April 1, 2009)

Arizona: reduced formulary
Arkansas: reduced formulary, lowered financial eligibility
Iowa: reduced formulary
Nebraska: reduced formulary
North Carolina: capped enrollment
North Dakota: cap on Fuzeon
Utah: reduced formulary, lowered financial eligibility
Washington: client cost sharing, reduced formulary (for uninsured clients only)


ADAPs Considering New/Additional Cost-containment Measures (before March 31, 2010*)

Indiana: capped enrollment
Kentucky: reduced formulary, client cost sharing
Missouri: reduced formulary
North Dakota: capped enrollment, waiting list, reduced formulary, annual expenditure cap
South Dakota: reduced formulary
Wyoming: lowered financial eligibility, annual expenditure cap


* March 31, 2010 is the end of ADAP FY2009. ADAP fiscal years begin April 1 and end March 31.

So what can you do to make a difference. You can call and write your Senators and other representatives about more funding for ADAP. Let them know you believe all Americans should have access to life saving HIV medications.

Too many American lives were lost before we had life saving HIV medications starting in '96. The fact we allow American men and women to die only because they can not afford the medications today dishonors the deaths of all those who died before they were available.

Until we meet again; here's wishing you health, hope and happiness.

big bear hug,





Daddy Dab