July 25, 2008

July 25, 2008
How's it going on this last day of the work week for you? I hope you're having a good week so far and just think... it's over until Monday unless you work weekends.

I had an early day today because it was time for my six month review for Ryan White funding. Ryan White funds help pay for my medications since the cost of them have exploded in the past five years. My share with private insurance is now over $500. per month which is ridiculous once you consider how much I pay for my insurance and the amount of my yearly deductible. But what else is a guy to do? At least I have insurance that helps.

So after having my protein shake and getting my shower, I headed off to AHF to meet Antonio for my review. Antonio showed up at 10:30am and we went back to his office. He noticed my leg and my speech and we talked about my recent health problems. Antonio had me finished in about fifteen or twenty minutes. We also had a great talk which we really had never done before now. I was really impressed with his desire and passion in serving the HIV community through his work. There are so many people now that are in the business for a paycheck and to me do not really care about the patients. Antonio also "gets it" when we talk about the lack of advocacy and voice in the HIV community. He might be a great recruit for the project board in the future. So now I am done with paperwork until January of next year. I have an appointment with my doctor again next Monday for my next review and will update you then. Then it was time to head home before the temperature raised any higher. That's why I made an early appointment time so I could be back home before lunch time. Then it was time for a nap with Kitty and some peace and quiet while Gary is at work.

I found out today that a wonderful man I had the pleasure of meeting and hearing speak in Washington DC passed away today. Randy Pausch, the Carnegie Mellon University computer scientist whose "last lecture" about facing terminal cancer became an Internet sensation and a best-selling book, died Friday. He was 47. Pausch died at his home in Chesapeake, Va. Pausch was diagnosed with incurable pancreatic cancer in September 2006. His popular last lecture at Carnegie Mellon in September 2007 garnered international attention and was viewed by millions on the Internet. In it, Pausch celebrated living the life he had always dreamed of instead of concentrating on impending death. His book "The Last Lecture" leaped to the top of the nonfiction best-seller lists after its publication in April and remains there this week. The book deal was reported to be worth more than $6 million. At Carnegie Mellon, Pausch was a professor of computer science, human-computer interaction and design, and was recognized as a pioneer of virtual reality research. On campus, he became known for his flamboyance and showmanship as a teacher and mentor. The speech last fall was part of a series Carnegie Mellon called "The Last Lecture," where professors were asked to think about what matters to them most and give a hypothetical final talk. The name of the lecture series was changed to "Journeys" before Pausch spoke, something he joked about in his lecture.

He is survived by his wife, Jai, and their three children, Dylan, Logan and Chloe; his mother, Virginia Pausch of Columbia, Md.; and a sister, Tamara Mason of Lynchburg, Va. In a statement Friday, his wife thanked those who sent messages of support and said her husband was proud that his lecture and book "inspired parents to revisit their priorities, particularly their relationships with their children." To watch his speech on YouTube click above. It is an excellent speech that I thoroughly enjoyed watching.

I ended up grilling some fillets for dinner and served them with loaded baked potatoes and fresh lima beans. Nothing like a good home cooked meal. Now don't ask me to accomplish a great meal in the kitchen but I will grill for you anytime. Everything turned out great and I even managed to finish my whole meal for a change. I have a very hard time eating large quantities at one time. We ended up watching some comedy on the Comedy Channel for a couple of hours and are now getting ready to turn in for the night.

Hope you had a great day also. Here in Jacksonville we are celebrating Gay Pride this weekend so I will be covering the events that I am able to make it to during the weekend blogs.

Wishing you hope, health and happiness.

big bear hug,

Daddy Dab