Welcome to another day in my life. Today is Thursday and I hope you are having a safe and great week so far. At least, I hope your week is going better than mine.
As you have recently heard me complain, Florida is going to be starting an ADAP waiting list on June 1, 2010. Right now I am so frustrated and angry. I have worked for years to prevent this from happening. So this is my worst nightmare. It is bad enough we have ADAP waiting lists in the other parts of the country. I work constantly to try and end them. But now we are going to have one in my home state is just infuriating.
The government wants me to go out and get people to get tested so they know their status. Now if they do not have private health insurance and/or can not afford their medications then they will be put on a waiting list for life saving HIV medications. So much for people having a reason to get tested.
Yesterday, I was one a three hour conference call which was organized by CHAMP. CHAMP stand for Community HIV/AIDS Mobilization Project. You can see their website at: http://www.champnetwork.org/
The call was about whether we should change treatment to when people still have 500 tcells instead of waiting until they reach 300 or 350 tcells. I was so glad when one of the speakers, Anna, brought up the fact about funding and the ADAP waiting lists. The first two speakers were quoting remarks about all the research as to why we should treat people earlier. But no one was addressing how we were going to afford it or the fact we already have people on waiting lists. So thank you Anna.
The call overall was a good call. There was a lot of coverage about the SMART study and why would should do earlier treatment. There were also comments about stigma and criminalization of people with HIV. Almost everyone speaking made great points. I guess I am just waiting to see what happens with all the information.
So I will be working again today to see what I can do to either prevent or limit the blood bath an ADAP waiting list is going to cause here in Florida. Wish me luck.
Until we meet again; here's wishing you health, hope, happiness and just enough.
big bear hug,