February 11, 2011

February 11, 2011
Feedback from ADAP Crisis Summit

Welcome to another day in my life. Today is Friday and we have almost made it through another work week. I hope you have had a safe and great week so far.

As you know from reading this blog, Dab the AIDS Bear and I were recently at the Emergency ADAP Summit in Fort Lauderdale Beach, Florida. Here is some feedback from the surveys done after the summit by Brandon Macsata who is the CEO of ADAP Advocacy Association:

On behalf of the ADAP Advocacy Association (aaa+) and its board of directors, I am pleased to report that our 2011 Emergency ADAP Summit was a stellar success by all accounts. With nearly 140 ADAP stakeholders in attendance representing all facets of our community including patients, advocates, case managers, pharmacists, physicians, nurses, allied health professionals, pharmaceutical company representatives, AIDS Service Organization representatives, county health department professionals, bloggers and policy wonks it clearly demonstrated that people with differing perspectives and viewpoints can assemble for a common purpose. Despite some contentious dialogue at times (which by the way is a healthy thing), it was agreed that the community needed to come together behind a common message in 2011, and avoid the mistakes from the previous year. I am proud to say that we also funded a record number of scholarships to ensure that people living with HIV/AIDS were present to speak up for themselves throughout this process.

The 2011 Emergency ADAP Summit was the first national gathering of HIV/AIDS advocates and activists this year, but it was also the fourth such summit convened by aaa+ since starting just a few short years ago. First time summit attendee, Enrique from New Orleans, summarized the importance of the summit when he said, "We have to remember that ADAP is part of the Ryan White Care Act coming up for reauthorization in 2013, and we are currently in a time of change as the affordable care act is coming, but we must continue to advocate for ADAP RW and for fair treatment."

aaa+ will continue to support ANY solution to alleviate the escalating ADAP crisis, just as it did in 2010. The bottom line is people living with HIV/AIDS need and deserve access to the appropriate care and treatment, regardless of partisan politics or posturing. The debate should focus on saving lives, not scoring political points for our allies or against our adversaries.

I invite you to learn more about the summit and what was presented by visiting our website. Speakers who shared PPT presentations have graciously made them available here: http://www.adapadvocacyassociation.org/events_01_2011_agenda.html

While the anecdotal feedback on the summit was excellent, I wanted to take the time to share the concrete feedback that was obtained via our anonymous survey, which solicited feedback and constructive criticism for every summit attendee. I am pleased to officially report that your feedback says it all! Thank you for helping to make the 2011 Emergency ADAP Summit a great success! Now let us build on the summit moving forward into the remainder of 2011.


How would you rate the information shared with you by Murray Penner of NASTAD about the ongoing national ADAP crisis?
Excellent = 51.02
Very Good = 34.69%
Good = 08.16%
Fair = 06.12%
Poor = 00.00%

How would you rate the information shared with you by Tom Liberti of the Florida Department of Health about the ongoing Florida ADAP crisis?
Excellent = 51.02%
Very Good = 24.49%
Good = 14.29%
Fair = 10.20%
Poor = 00.00%

How would you rate the ADAP Grassroots Advocacy Training presented by Christine Campbell of Housing Works, Joey Wynn of Broward House, Larry Bryant of Housing Works and Joey Terrill of AIDS Healthcare Foundation?
Excellent = 57.45%
Very Good = 12.77%
Good = 23.40%
Fair = 02.13%
Poor = 04.26%

How would you rate the ADAP Bird Dogging Advocacy Training presented by Johnny Guaylapo of Housing Works? Excellent = 26.09%
Very Good = 26.09%
Good = 28.26%
Fair = 10.87%
Poor = 08.70%

How would you rate the information shared with you by Murray Penner of the Fair Pricing Coalition about the ongoing negotiations with the pharmaceutical companies and their patient assistance programs?
Excellent = 38.10%
Very Good = 40.48%
Good = 14.29%
Fair = 07.14%
Poor = 00.00%

How would you rate the Patient Assistance Program Updates presented by Juan Carlos Riascos of Abbott Laboratories, Jessiva Riviere of Bristol-Myers Squibb, Mick Sullivan of Tibotec Therapeutics and Judy Buchanan of Gilead Sciences?
Excellent = 42.11%
Very Good = 36.84%
Good = 15.79%
Fair = 05.26%
Poor = 00.00%

How would you rate the Statewide ADAP Advocacy Training presented by Robin Webb of A Brace New Day and Jesse Fry of MotivePower, LLC?
Excellent = 42.50%
Very Good = 20.00%
Good = 25.00%
Fair = 07.50%
Poor = 05.00%

Do you believe that you can use the information and resources from the event to help ADAP patients in your state?
Yes = 100.00%
No = 00.00%

Overall, how would you rate this event? Excellent = 40.82%
Very Good = 42.86%
Good = 12.25%
Fair = 02.04%
Poor = 02.04%

Would you recommend this event to a colleague?
Yes = 95.65%
No = 03.35%

How would you rate the Food & Beverage provided by the Westin Fort Lauderdale Beach Resort?
Excellent = 22.45%
Very Good = 32.65%
Good = 26.53%
Fair = 16.33%
Poor = 02.04%

How would you rate the Meeting Room Space provided by the Westin Fort Lauderdale Beach Resort?
Excellent = 44.90%
Very Good = 40.82%
Good = 14.29%
Fair = 00.00%
Poor = 00.00%

How would you rate the Guest Room Accommodations provided by the Westin Fort Lauderdale Beach Resort?
Excellent = 57.14%
Very Good = 22.86%
Good = 08.57%
Fair = 11.43%
Poor = 00.00%

Overall, how would you rate the Westin Fort Lauderdale Beach Resort?
Excellent = 52.08%
Very Good = 31.25%
Good = 14.58%
Fair = 02.08%
Poor = 00.00%

The comments submitted also reflected the general attitudes about the summit, its speakers and their presentations, hotel selection and overall satisfaction.

So now you know what it would be like to possibly attend one of the ADAP Summits. Hope to see you at the Summit in Washington, DC this coming July.

Until we meet again; here's wishing you health, hope, happiness and just enough.

big bear hug,

Daddy Dab